–A family walk is scheduled for this evening to support a Whittemore child who’s been diagnosed with a rare neurological disorder. Ryker Stone was diagnosed with Leigh Syndrome this spring, a genetic disorder that impacts the central nervous system.
September 17th is recognized as Leigh Syndrome Awareness Day, and was created by the Cure MITO Foundation, an organization formed to unite the global Leigh Syndrome community, accelerate patient centered research, treatments, and cures.
Anyone who would like to participate in tonight’s free event is asked to meet at the Freedom Rock in Whittemore at 6 PM. Participants are also encouraged to wear their “Truckin for Ryker” shirts.
Anyone who needs more information can contact Britteny Stone by calling 515-341-6133.
